Welcome to www.los-bleedos.net - the international site for young people with bleeding disorders. Before you create a profile, please read and accept this privacy policy.
By accepting this privacy policy, you allow us to use information about you for the purposes described below - and nothing else.
www.los-bleedos.net is hosted in Denmark, and it thus complies with Danish law which ensures that personal data is not abused.
| If you are under the age of 15, you need your parents' or guardian's permission to create a profile on www.los-bleedos.net. For this reason, they must also read this privacy policy. |
In the first section of this privacy policy, you will find some good advice about your profile on www.los-bleedos.net.
In the second section, we explain what we use your user profile information for.
We hope you enjoy exploring www.los-bleedos.net!
Take care of yourself and others
Like most other online communities, www.los-bleedos.net is a public forum. This means that many people you do not know can read a large part of what you write. For this reason, it is important that you are aware of your boundaries for how much information about yourself you want other people to see.
www.los-bleedos.net is a forum where young people should feel welcome. Approach others with respect and openness. www.los-bleedos.net is not responsible for what is written in the debate, the profiles or the guest books. www.los-bleedos.net reserves the right to delete posts that we deem inappropriate.
Guest books and user profiles are only accessible by other users of www.los-bleedos.net. The debate can be seen by everyone who visits this site. www.los-bleedos.net treats all your non-visible data (such as e-mail address and postal address) as confidential. Only the administrators of www.los-bleedos.net have access to these data.
User name
If you wish to remain completely anonymous, we advise you to create a user name
that you are sure nobody will recognise.
Password
You can make www.los-bleedos.net remember
your login. This is only advisable if you are using your own private computer.
Do not choose this if you are using a computer at your school, the library or
someone else's computer.
Free-text field
You can write all sort of information about yourself in the free text field of
the user profile. Beware that all registered users of
www.los-bleedos.net can see what you write.
You are not allowed to write your e-mail address, phone number, postal address or to give any information that reveals where you live.
You can access and change information in your user profile at any time by logging on and clicking "my profile".
Picture
You can upload pictures to your profile. The pictures could be of yourself, but
keep in mind how anonymous you wish to be. If you upload pictures of other
people, remember to ask for their permission first.
You are not allowed to upload pictures that violate copyright rules for instance by uploading a picture taken by another person if the person has not consented to it.
Debate
When you write a contribution to the debate, everyone who visits
www.los-bleedos.net will be able to read it. You are not allowed to
write your e-mail address, postal address or to give any information that
reveals where you live.
You do not have access to deleting your own contributions, but you can ask the webmaster of www.los-bleedos.net to delete your contributions by sending an e-mail to info@los-bleedos.net.
E-mails from www.Los-Bleedos.net
You can choose to receive various e-mails from
www.los-bleedos.net 1) when you have received a new message in your
guest book and 2) when something new has happened in a debate to which you have
contributed.
Guest books
When you write a message in other people's guest books, you can choose to make
your message visible to everyone or only to the person you are sending the
message to. If you are having a private conversation, it is a good idea to
ensure that you are the only ones who can read the messages in the guest books.
Messages in guest books can only be deleted by the owner.
Your rights
You have the right to see what information we store about you on
www.los-bleedos.net. You have the right to know for what purposes
we collect the information, who receives the information and where the
information derives from.
If you wish to have access to this, please make a written request to
www.los-bleedos.net.
Contact
You are always welcome to contact www.los-bleedos.net
if you have any questions or comments. Please write to
info@los-bleedos.net.
Data controller
Danmarks Bløderforening
Frederiksholm Kanal 2, 3
DK-1220 Copenhagen K
DENMARK
Phone: +45 33 14 55 05
E-mail: dbf@bloderforeningen.dk
User name
We ask you to create a user name because we want to give you the opportunity to
remain anonymous. In addition, on a regular basis we also use the user names to
calculate the total number of created user profiles on
www.los-bleedos.net.
Password
We ask you to enter a password to ensure that you are the only person who logs
on to your personal user profile. If you let your computer remember your
password, a cookie is stored on your computer. The cookie only records your
user number in order to retrieve your password. The cookie is normally stored
here: C:\Documents and settings\[your user name]\cookies and it is named [your
user name]@www.Los-Bleedos.net[1].txt. This may, however, differ.
E-mail address
We need your e-mail address in order to send a confirmation to you when you
have created your user profile. We send the confirmation in order to avoid fake
user profiles.
If you choose to receive e-mails from www.los-bleedos.net,
we also need your e-mail address for this. Only the administrators of
www.los-bleedos.net can see your e-mail address.
Nationality
We ask for your nationality because we would like to know the broadness of our
user group. This way we gain insight into the target group of
www.los-bleedos.net, and we are able to adapt this site to the needs of
the target group.
We can also use the information for marketing purposes because we can determine
which countries/continents need extra marketing and which do not.
Gender
We ask if you are a girl/women or a boy/man because we would like to know our
user group well. This way we gain insight into the target group of
www.los-bleedos.net, and we are able to adapt this site to the needs of
the target group.
Year of birth
We ask for your year of birth because we would like to know the various age
groups of our users. This way we gain insight into the target group of
www.los-bleedos.net, and we are able to adapt this site to the needs of
the target group.
Pictures
You can upload pictures to your user profile.
www.los-bleedos.net does not use the pictures in any other context.
Deletion of profiles
You can, at any time, ask the webmaster of www.los-bleedos.net
to delete your user profile by sending an e-mail to
webmaster@los-bleedos.net. Even if your profile is deleted, what you
have written in the debate or in other user's guest books will not be deleted.
www.los-bleedos.net can at any time delete a user profile if, in our opinion, it is misused, is in violation with Danish law or contains wrongful or misleading information.
All profiles that have been inactive for 12 months will be deleted automatically.
Change of this policy
www.los-bleedos.net retains the right
to make changes to this policy. The latest version of the privacy policy is
always accessible on www.los-bleedos.net.
If significant changes are made, we will ask you to accept the new policy.
Receivers of data
www.los-bleedos.net does not pass on
information written by you to other people than the users of this homepage and
only to the extent specified above.
Storing of data and access
All data on www.los-bleedos.net is
secured regularly through back-up. Information that a user has submitted but
chosen to hide is stored as confidential. Only administrators of
www.los-bleedos.net have access to this information.