please help!

hello all! i am kitten. though i have Von willebrands disease i am suffering too much from a awful pain. in my country,belarus, there are no factor concentrates. some doctors think i have a female form of hemophilia. the problem is that i have many Haemorhages in many parts of my body. now i have them in stomach in my eyes and some ruptures of eyes too. i am alllerergic to crio, i don t know what to do! i tried one times immunate and coate-dvi and they was alergic and uneffective. i heard of some effective factor concentrates of 8 and von willebrands factor such as octanate, wilfactin,haemate-p. or maybe there is some other concentrates. dear people! please, if someone can help me to find factor, or donate a little to me, i will be very happy to stop this pain! [e-mail address removed by the editor]

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cicero

18 Jun 2006 21:16

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Dear kitten,
I am truly sorry to hear about the hardship you are facing. Unfortunately, the Los Bleedos website can not be used for organising any kind of shipment of medical products. This would entail a long list of moral and legal problems that would ultimately force us to close the website. I kindly ask for your understanding in this matter.

I would encourage you to contact the World Federation of Haemophilia (WFH) and explain your situation. While they have limited ressources, they have been able to help many patients in developing countries through their Humanitarian Aid programme, thanks to the generous donations of factor concentrates they receive. However, the WFH is entirely dependent on donations and hence they do not control the kind of product available to them, nor the amount. Therefore they cannot respond to every call for help, as much as they would like to.

With sympathy,
cicero

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nship

06 Jul 2006 13:15

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Hi kitten,

have you contacted your doctor? you could have a prophylactic drug before the transfusion.
and have you tell the blood bank or the blood transfusion service that you have the transfusion reaction? in some circumstances, they might be able to find the right blood for you.
just, please, don`t give up trying.

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